Tuesday, May 06, 2008

our little trooper

i took grayson to get bloodwork done yesterday and MAN was he brave! his veins weren't working so hot, so they had to poke his little arm THREE times to get enough blood. it was heartwrenching to watch. lyss met me there to make faces at him and distract him which totally worked. he cried just a bit when he was tired of them trying to get the SEVEN tubes, but never when he was poked. he had a FIT though, after it was over and we were wondering why he was crying so hard, and then realized that the tech had forgotten to untie that rubber thing they put around your arm until you lose circulation. poor thing, his hand was PURPLE. but he did so good. i really wanted to go get him ice cream, but yeah. not gonna happen. anyways, we tested him for 13 more foods and we are praying that at least ONE thing will come back negative. just at lease ONE!! i really want to know that he has a safe food because i'm throwing caution to the wind every time i feed him right now. he's in the middle of a flare up, and i don't know if its the quinoa, apples or the new cream i'm putting on him. of COURSE i would start three new things at the same time. i am so not good at this. i can feel your prayers, i think i'm having a better day mentally today, but the day's not over yet. kenny worked from home this morning and sometimes just having him HERE even though he is in work mode and not doing anything with the kids, helps a ton. i don't know why. and that obviously won't happen very often. anyway, please please if you read this post, say a quick prayer that grayson will have a safe food when we get the results back. thanks :)

5 comments:

Anonymous said...

have you gotten all of the results back from the last tests? We'll be praying!!! anna

amy said...

yea, the last test results were all positive. every last thing was positive. so that's why we are PRAYING for a negative with this round.. thanks for joining us in prayer!

Anonymous said...

Praying for negative results on these recent tests, and keeping your prayer requests every night. Amazing that he was so brave, poor little bug! The clip of Grayson on the stairs is adorable, thanks for sharing.

N. Palhinha

Tracy said...

Prayers from the other side of the country too. What exactly CAN you feed him? How do you manage getting him enough nutrition? It totally seems like a full time job in itself and then you still have your full time job of mom and the house, etc.

Anonymous said...

I'm still waiting to hear from our dietician, but I'll let you know as soon as I do. I'm glad his immune system has tested fine, but I'd think that all positive results would say SOMETHING about how his immune system is working. dangit! These are the days I wish I'd gone to medical school - at least I could understand the journal articles. WIthout med school, you can't even understand the language! anna