i found the video that was on nightline about blake and i think it will shed light on anyone who doesn't understand totally what we're doing. blake's case was definitely more serious, his docs told him to withhold everything for two years and be fed on a gtube only. grayson hasn't had to have one of those yet, but another year of the way we are going now, and i could almost guarantee that he would have had to have one. anyway, this was shot partly at becky and ryan's home and then mostly right smack in the middle of the unit that we are in every day. so when you watch this and you see the docs and nurses, and eating areas, and nurse's station, those are our docs and that is where we are all day! now you have a visual!! anyway, watch the video. i cried a little..just thinking of what we might come home with! more than three foods!!
http://abcnews.go.com/Health/AllergiesNews/Story?id=7232662&page=1
Friday, June 12, 2009
you totally have to watch this..
Posted by amy at 9:49 PM
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OMG! I am just in tears....for Blake & his family & their progress AND because ya'll are at the best place for Grayson! That is sooo exciting, that hopefully & prayerfully you will have some answers soon! We are praying for your whole family, for strength, for answers, for sleep, for PEACE...for EVERYTHING. We love ya'll so much. Give the kids a kiss from us & sending loving ((((((HUGS)))))) your way! :)
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