Friday, July 10, 2009

we are still here

and doing well. it seemed like it took just as long to get back in the swing of things as it did for us to be gone. i don't think i left the house for a week, and if i did, it was because i had to. the kids are doing good. aislyn says she does not want to go back to denver. i don't blame her. it was certainly NOT a vacation in any sense of the word. i think somewhere in my mind i thought maybe it would feel like one.. but alas, no. it did not. i have not ever been that tired i don't think. it was a GREAT trip, don't get me wrong. but certainly not a vacation.

grayson has flared once or twice since being home, but it is likely because i am letting him "be more of a kid" and run through the grass, step in water with his socks off, etc. it's very hard for me to let him do these things, knowing that he will likely flare, but its good because i know how to make him comfortable afterwards. his hands are still his problem area but it's not nearly as bad as it was. i only have to do a scratch check once or twice a day and i think he is understanding that when he scratches, it hurts. we have done several wet wraps on his extremities and he lets us, so that's good. i've done his head a couple times, but he usually pulls it off his face within 20 minutes. i'm looking forward to the fall, his eczema seemed to do a little better last year in the fall/winter months, and i hear it's usually the opposite. so i'm not sure why that was the case. hopefully it will be the case this year too. he is eating SOME new foods, but not tons. he loves fritos, raisins and sometimes corn. i still canNOT get him to eat apples and grapes, though he carried one around yesterday, which i guess was a start. aislyn encourages him to try new things, it's cute. she's a self proclaimed "good" big sister.

we are enjoying our summer but would really like for it to not get hot until 1, during naptime so we could go to the park in the mornings. but oh my word i just can't get out in the heat. i have fall fever, as usual. i want to buy pumpkins and halloween costumes and it's july 10. typical.

i have no pic for this post..sorry. i know that makes them considerably more interesting!

3 comments:

Anna said...

Amy - do NOT worry about the new foods. Grayson will get there. Just keep putting them in front of him. The barage of new foods is pretty overwhelming for his sensory system, between smell, taste and texture. He'll get there. Part of the issue might be touching the foods - you could try fun "play but not eat" with the foods he doesn't like. Make games like making shapes with the grapes & apples and toothpicks. That way he'll get used to touching them without feeling like you're pushing him to eat them. Fruit is a whole different thing to touch - usually cold and sometimes wet and it can be tough. The best thing of course is exactly what Aislyn is doing - have him eat with you guys and other kids who are eating those foods. He's motivated to eat - you don't have to worry about that. Just give him some time to adjust. :)

sherri said...

I'm glad you guys are doing well! I was worried when I didn't see a post for a while. I'm praying Grayson will start liking his new foods!

jennie said...

i feel like i just got caught up with everything in your life these past months, and praise the Lord that Grayson is doing better! I really want to know more info about Denver for Lenya, she's still so itchy, wearing tights in the hottest part of summer. But so great to hear what's going on!
Much Love, Jennie Lusko